Friday, September 18, 2009

Still here... sort of

Well... again. Sorry for the delay in post. My laptop is currently not working which has cost me an entire day this week on the phone with tech support (while trying to keep up with the kids). I am having to go back to old reliable which was replaced because it was old and slow (and we really wanted to have a means of communication while in Ukraine). I have been trying to get things done this week, but it takes so long that I have not been very productive. Still hoping the laptop can be saved since it is better and it has all my photos from Ukraine! I'm just now finding enough time to attempt to post here.

Now that I've given my excuses... we are doing ok this week. I want to brag a bit on the girls. Both have taken steps forward in potty re-training. Both have indicated that they need to go, Sophia took herself once and Anastasia has stayed dry some in between (Sophia is normally dry, but she doesn't request to go on her own or stay dry consistantly during naps/nighttime). For now, we still buy bulk pullups! However, progress is being made! Sophia also has been playing much better this week. We even had an outside playtime that she did not do her normal sulking thing, but played the entire time instead. We have had a few incidents with the glasses though. Both have taken each others off (being ugly) and both have had to be repaired (Anastasia's twice now). They go back at the end of the month for recheck on eyes to see if this is the right prescription. We will then purchase the lenses for Anastasia's second pair. That will save us a little on trips to have glasses repaired. If I haven't already mentioned this... Specs 4 Us is where we found all of their glasses... Sophia, Anastasia and Shelby (Shelby doesn't wear hers yet... eye appt is in October). They make frames for children with DS. Typical frames do not fit their features very well. This company receives a very strong recommendation from me. They have been absolutely wonderful to work with. www.specs4us.com. If you check them out.... tell Maria we sent you. No benefits to us at all. I just want her to know we are very appreciative and singing her praises! :)

We have not had much going on this week other than the normal school/preschool schedule. Next week is the speech eval and psychologist eval before the IEP on Friday. I'm ready to get those checked off so they can begin therapies. Anastasia has the most to gain since she has the biggest delays as of right now. The girls have an appointment scheduled with the Down Syndrome Clinic in November. I'm hoping they will serve as a 'second opinion' on everything to date. A little reassurance. They will also check their hearing.. not just the screening.

Miracle League has started Fall Ball... sort of. We have been rained out all 3 games. Only Shelby is signed up. Too soon for Sophia and Anastasia. Who knows.... maybe Spring. Buddy Walk is around the corner. Our walk is on October 10th. Looking forward to it! We will have 3 buddies to celebrate this year! Normally we fundraise/walk for Shelby's Team. This year we will have to update to include all 3 girls. Team Haire? I know... original. It doesn't matter much though... only that the $$$$ raised goes to benefit Down Syndrome Awareness. Is there a walk near you? If so... check it out!

1 comment:

  1. Hi! We are in the process of getting glasses for Erik (Simon). We are trying to use Specs4us if we can find a provider to carry them that contract with our insurance to save us a little money. Glad to know you had a good experience!

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